Decision support tools like this one have been shown to improve quality of decision-making and numerous patient outcomes, including:
At the same time, these types of tools reduce the physician time and emotional burden of engaging their patients in these planning conversations.
Plan Well Guide was created by critical care physician and researcher Dr. Daren Heyland, who has been studying communication and decision-making for seriously ill patients for more than 20 years. He and his colleagues have conducted many research projects through the Canadian Researchers at the End of Life Network (CARENET), the results of which have been used to inform the development of this planning tool.
The Plan Well planning guide was created by critical care physician and researcher Dr. Daren Heyland, who has been studying communication and decision-making for seriously ill patients for more than 20 years. He and his colleagues have conducted many research projects through the Canadian Researchers at the End of Life Network (CARENET), the results of which have been used to inform the development of this planning tool.
People who engage in advance serious illness planning:
Also, advance medical care planning was shown to reduce the burden and conflict among loved ones and reduced stress, anxiety and depression in surviving family membersi.
[i] McMahan, Ryan D., et al. Deconstructing the Complexities of Advance Care Planning Outcomes: What Do We Know and Where Do We Go? A Scoping Review. 7 Sept. 2020, onlinelibrary.wiley.com/doi/abs/10.1111/jgs.16801.
Compared to other tools that may be used to help patients near or at the end of life, our Plan Well Guide offers the following features or attributes:
To learn more about the unique features of Plan Well Guide, check out our video series below, where Dr. Heyland explains the key components behind Plan Well Guide.
You can use the website to help your patients better understand the different types of medical care, and what would be important to them during serious illness. The website will generate a Dear Doctor letter after the patient completes their plan. They will be able to share this letter with you which will help them communicate their values and preferences for medical care.
In general, we recommend that the attending or primary care physician engages the patient and/or substitute decision-maker to go through the website and discuss it amongst themselves, complete an Advance Serious Illness Plan, and bring that back to a subsequent appoint for discussion with the Doctor and translation of the ‘Plan’ into a medical order for the use of life-sustaining treatments.
Depending on your setting, this approach may require some adaptation. For example, if you have access to allied health care professionals or volunteers who can engage the patient and review the website with the patient and/or family, that may work better. Alternatively, if the doctor sends the patient home to review the website independently, an allied health professional or volunteer may meet with the patient before they meet with the doctor again to ensure they have gone through the website and understood the information presented.
A randomized trial of Plan Well Guide was recently published in CMAJ Open. The results showed that Plan Well Guide improves decision quality, patient and physician satisfaction, and reduces time physicians spend on their interactions with patients.
Quality Improvement Project — Physician Recruitment
We have just begun an exciting new quality improvement (QI) project and are looking for participation by Health Care Professionals, to help us recruit additional sites. The goal of this project is to develop an efficient tool to enable family doctors to engage patients to do serious illness planning via Plan Well Guide and to use automated electronic reminders to help move the patient along in the planning process. We aim to build an electronic platform to facilitate these patient-doctor interactions and would value your participation in helping us recruit approximately 30 patients to test out our novel system over the next few months.
To learn more about this project, and how you can help with our recruitment, download a detailed fact sheet here.
This two-page worksheet found here, is a quick guide to determine patient goals of care designation. It was designed as a tool for health care professionals to use with patients who are unfamiliar with Plan Well Guide. It is designed for those who haven’t been through the website or the pamphlet but who you want to use the constraining values scales and the grid to guide your conversation in the moment. It can be used when you are seeing the patient in the clinic, the ER, or on the wards, and when you don’t have the luxury of time to send them off to do their preparatory work on the Plan Well Guide website or pamphlet.
We have also developed a number of resources to help you share this website, and to support your patients as they reflect on their values and preferences:
Plan Well guide Prescription Pad — this downloadable prescription pad gives you a convenient way to encourage your patients to visit the Plan Well website.
This printable pamphlet is a shortened version of the key information on the website and outlines the different types of medical treatment and asks patients questions about their values and preferences. The last four pages can also act as the ‘Dear Doctor’ letter, they are a good place to record the patients values and preferences, for those who may not wish to work directly on the website.
This Guide provides a framework including ‘scripts’ to assist you with engaging patients and/or their substitute decision makers (in the case of an incapacitated patient) in goals of care (GOC) conversations that lead to medical orders for the use or non-use of life-sustaining treatments.
This training video demonstrates the unique features of the Plan Well Guide website and shows how it can be used in clinical practice. For more information and a live demo or presentation, please contact us!
Listen to Dr. Heyland explanation of the importance of using constrained values clarification tools, like we use in Plan Well Guide.
Listen to Dr. Heyland explain concerns about treating patients as ‘informed consumers’ and speak to the need of using decision aids, like Plan Well Guide, before the decision-making encounter
Listen to Dr. Heyland explain how planning for serious illness, like COVID-19, is different from planning for your death, like when you have advanced cancer
Listen to Dr. Heyland speak out against the validity and utility of instructional directives and promote the concept of preparing for future shared decision-making, like we do in Plan Well Guide.
This video features families, doctors and researchers who have had advance care planning discussions and may be used to motivate patient and families from engaging in this planning exercise.
This video describes CPR and provides statistics around survival rates and the impact of CPR on various age groups, to help patients understand whether CPR is right for them.
If you have comments or feedback regarding this website please contact us!