These resources can help you think more about your values and preferences, and give you more information about medical care, treatments and decisions:
Plan Well Guide Collaboration with Caregivers4Change:
On October 7, 2020 The Declaration of Family Caregiver Rights and Responsibilities was released to the public. Dr. Daren Heyland drafted the Declaration with input from Hsien Seow, Associate Professor from McMaster University and lead of the Caregivers4Change network, Sharon Baxter, Executive Director at the Canadian Hospice Palliative Care Association and other colleagues from the Caregivers4Change Network.
This Declaration comes in response to the restrictions on family caregivers accessing and supporting vulnerable patients and residents across Canada during the COVID-19 pandemic. The Declaration calls upon Canadians to adopt and promote family caregivers’ rights and responsibilities designed to realize, maintain, and strengthen the role of family caregivers as an essential component of a caring and compassionate society.
The Declaration includes a call to action- sign a petition, share your story and share with others. Check out the details on the Caregivers4Change website: https://www.caregivers4change.com/declaration
Graphic Values History Tools
These tools can help you better explain your values or what’s important to you when you consider your wishes for future medical treatments. They contain text and graphic images to help you consider the acceptability or unacceptability of various health conditions. They can be very helpful for patients at risk of developing dementia, stroke or other disabling neurological disorders. If you use these tools, make sure you keep them with your “Dear Doctor” letter and other important planning documents. Please remember, these are not legal documents and you should still fill out the legal forms required in your province or state for health planning and naming of substitute decision-makers.
What’s important to me – Patient version
What’s important to me – Substitute Decision Maker version
Pamphlet of Plan Well Guide – Short Version
We know not everyone likes working on the internet so we’ve created a printable version of the short version of the website. It will not have all the same information as the website but the last 4 pages of the pamphlet still function as the “Dear Doctor” letter. Click here to download the pamphlet.
Cardio-Pulmonary Resuscitation (CPR) – watch this video to learn more about CPR and whether it’s right for you or a loved one.
“Advance Care Planning Conversations” – watch a video featuring families, doctors and researchers who have had advance care planning discussions.
Learn how to decide on a Substitute Decision Maker by watching this video:
Are you a Substitute Decision Maker? Here’s what you should know:
My ICU guide – this website for families of critically ill patients includes valuable resources and information about what to expect in the ICU and also includes a questionnaire that can be used to help you and the health care team make important medical decisions.
Legal Terms in your province territory – each province and territory in Canada uses different terms to describe documents and people who would speak for you if you couldn’t speak for yourself. This page provides common terms used in each province and territory
ICU Terms and Treatments – learn more about different ICU terms and medical treatments, and the professionals who work there.
These Netflix movies give real-life examples of serious illness and end-of-life decision-making in the hospital and in hospice care:
Extremis: a video about end-of-life decision-making in the Intensive Care Unit
End Game: a movie that explores the end-of-life support systems provided by doctors, nurses, and hospice professionals